Parents Face Heartbreaking Decision After Unborn Child Diagnosed with Sanfilippo Syndrome
Emily and Angus Forrester, parents from London, faced a devastating decision after discovering their unborn child was diagnosed with Sanfilippo syndrome, a rare genetic disorder also known as childhood dementia. Their two-year-old daughter, Leni, was diagnosed with the condition, which leads to the loss of motor skills and is typically fatal by the mid-teens. After genetic testing revealed both parents carried the recessive gene, they learned their unborn child would also be affected. With no cure available, the couple decided to terminate the pregnancy to focus on Leni's care. The family is now advocating for research funding and newborn screening to detect such conditions earlier. 
