U.S. Representative Mike Quigley Leads Bipartisan Effort for Healthy Brains Act to Aid Rare Disease Victims
U.S. Representative Mike Quigley (D-Illinois) is spearheading efforts to pass the Healthy Brains Act (HB 7779) in Congress. This legislation aims to improve communication and coordination in research related to rare brain diseases, including multiple system atrophy (MSA), and to investigate the role of environmental factors. The initiative is strongly supported by families who have lost loved ones to MSA, a rare and devastating neurological disorder. Jodi O'Toole and Shannon Grant, who both lost family members to MSA, are actively lobbying Congress members to advocate for the bill. They highlight the immense financial burden of fighting such diseases, as insurance often does not cover treatment or care, forcing families to sell assets to manage expenses. The bill has garnered bipartisan support, increasing its prospects for passage in the upcoming legislative session. 
