American Headache Society Advocates for Evidence-Based HEADACHE Act (H.R. 5536) in Congress
The American Headache Society (AHS) is actively advocating for the HEADACHE Act, H.R. 5536, a bill designed to improve research, care, and services for headache disorders. This legislative effort is rooted in a comprehensive research agenda developed by AHS in 2024, which identified 25 consensus research priorities across eight categories, including workforce development, inequities, data sharing, and quality of life. The bill's provisions directly address these priorities, such as establishing a National Headache Disorders Initiative to expand the headache workforce and creating an Advisory Council on Headache Disorders Research, Care, and Services. The AHS Advocacy Committee and Research Committee meticulously reviewed the draft bill to ensure its alignment with their research goals. Advocates, including patients and healthcare professionals, have been engaging with members of Congress to garner support and co-sponsorship for the bill, with over 260 congressional meetings planned.