A Mother's Unwavering Resolve
Sangeetha Chakrapani's life took an unexpected turn when she was advised to reduce the number of fetuses during her quadruplet pregnancy. Her decision
to embrace all four children, however, led her down a path of profound personal growth. Initially, the diagnosis of autism in two of her children presented a significant challenge, a surprise she struggled to accept. Yet, as she navigated this new reality, she discovered a landscape of hope, realizing that a fulfilling life alongside autism was indeed possible. This journey was one of deep self-discovery, leading to the acceptance of her children's unique identities and a personal rebirth as she matured alongside them.
Building Inclusive Workplaces
Witnessing firsthand the need for meaningful employment for individuals with autism, Sangeetha founded the Together Foundation. Her early attempt to partner with a hypermarket for selling homemade cookies was met with skepticism, fueling her determination to create a credible platform. Now, with an FSSAI-certified bakery, the foundation empowers young adults with autism. She champions the creation of 'autism-smart' work environments, urging businesses to develop supportive and sheltered spaces that not only offer job opportunities for neurodivergent individuals but also benefit neurotypical employees. This approach is crucial for harnessing the untapped potential within the autism community.
Shifting Focus: Support Over Cure
The Supreme Court's ban on stem cell therapy for autism, due to a lack of scientific evidence, underscores a critical shift in perspective. Sangeetha acknowledges the lingering hope many parents hold for a cure, a hope often pursued through various alternative therapies. She emphasizes the importance of prioritizing treatments that are safe and do not harm the child, advising parents to conserve resources. While acknowledging the slow but steady progress in therapies and the scarcity of affordable support, she firmly believes that focusing on support and acceptance is more beneficial than chasing unproven cures. This approach respects the individual's journey and fosters growth.
Securing Futures: Residential Care
The concern for a child's future after parents are no longer around is a significant anxiety for families of neurodivergent individuals. Sangeetha highlights the financial burden and limited opportunities for those in lower economic strata. While private residential facilities like The Together Community offer a solution for some, charging substantial monthly fees, Sangeetha's vision extends to developing low-cost residential models, supported by CSR initiatives. This endeavor aims to make supported living accessible to a broader spectrum of families, addressing the pressing need for long-term care solutions for people with special needs.
Advocating for Inclusive Education
Despite increased awareness, mainstream schools often hesitate to admit children with special needs due to a lack of resources and infrastructure. Sangeetha argues that for true inclusive education, schools require specialized teachers, tailored programs, and adequate space. The demand for shadow teachers highlights the cost barrier for many families. While 'special schools' play a vital role, Sangeetha calls for greater inclusivity and acceptance of these institutions. She suggests collaborations with neurotypical schools and volunteers to foster a more integrated and less segregated environment for learning and development.
Navigating Autism's Complexities
Sangeetha candidly discusses the 'many-splendored and multiple frustrating aspects' of autism. She touches upon behaviors like repetitive actions, public disclosures, and difficulties in expressing needs, which can lead to challenging behaviors. However, she stresses that understanding the triggers and employing empathetic, scientific approaches can help individuals regulate themselves. She notes that while structured training is rewarding, true acceptance lies in viewing autism as a different way of experiencing life, rather than judging individuals based on their achievements. Many individuals with autism lead lives of quiet determination, requiring consistent support for dignity and equality.
