What's Happening?
A UK-wide clinical trial led by the Institute of Psychiatry, Psychology & Neuroscience at King's College London has evaluated a self-guided behavioral sleep program for parents of children with epilepsy.
The program, known as COSI (CASTLE Online Sleep Intervention), includes online videos and written guides based on clinically informed sleep intervention techniques. The trial involved 85 children aged 4-12 years with epilepsy and their parents across 26 outpatient clinics. The study found that children using the app fell asleep on average 16.5 minutes earlier. However, parental questionnaires did not show a significant perceived improvement in sleep compared to standard care. Engagement was a challenge, with only 53% of participants using the resources. Despite this, parents who engaged reported increased knowledge about child sleep and recommended the tool.
Why It's Important?
The study highlights the potential of digital interventions in managing sleep problems in children with epilepsy, a condition affecting over 80% of children with neurodevelopmental disorders. Sleep issues in these children are a major concern due to the risk of seizures during sleep. The app provides a non-invasive, accessible solution that can be used alongside standard care. The findings suggest that while digital tools can be effective, engagement remains a critical factor. The study underscores the need for additional support for parents to maximize the benefits of such interventions, potentially influencing future healthcare policies and practices.
What's Next?
Following the trial, a Policy Lab was convened to evaluate the results and discuss future refinements. The lab included pediatricians, epilepsy specialists, and representatives from various health organizations. The conclusions supported increased support for parents using the app, emphasizing the need for human interaction alongside digital tools. Future directions may involve integrating more personalized support and follow-up to enhance engagement and effectiveness. The study's outcomes could lead to broader implementation of similar digital interventions in healthcare settings, potentially improving sleep management for children with epilepsy.
